A pile of books image

Information and Support

 
 
Advocacy

Advocacy for children and young people

About

Advocates are independent and offer support, protect a person’s rights and help them to speak out. 

This may include:

  • Going to meetings with a young person where decisions are made

  • Writing letters on their behalf

  • Helping to get information a young person may need and help them understand what their rights are.

 

Children and young people will be offered the support of an advocate by Children’s Social Care.

 

Further information

 

Barnardo’s (Children and young people) website: www.barnardos.org.uk/what-we-do/protecting-children/childrens-rights-advocacy

 

 

Contact

 

Children’s Social Care

Council of the Isles of Scilly

Carn Gwaval

St. Mary’s

Isles of Scilly

TR21 0NA

 

Tel:  01720 424483

Email:  childrenssocialcare@scilly.gov.uk

The Advocacy People logo

The Advocacy People

About

The Advocacy People are an independent charity offering free and confidential Advocacy. This means they offer help and support to anybody to speak up about their rights and for people who can't speak up for themselves, have someone (an advocate) in their corner to speak for them.

Who can access the service:

The Advocacy People services are for adults over the age of 18.

 

The also provide a service if the Advocacy referral is a Care Act referral and for a 16/17 year old transition to adult services. They provide an advocacy service for children aged 13-18 detained under section on Sowenna Ward in Bodmin Hospital. In addition,  a parent's (child protection) Advocacy referral can be made for a person who is in the Isles of Scilly or Cornwall area, has a disability or has an eligible health or social care need and is only for parents who have children within the Child Protection Process and who have been assessed as having an eligible social care need.

In Isles of Scilly they provide the following services:


Click on a service for more information:

NHS Complaints Advocacy

Supporting you if you have not had the service you expected from a service provided or paid for by the NHS

Mental Health Advocacy

For people who are under section in hospital or the community

Care & Support Advocacy

Making sure people have their say in how they are cared for and supported

Advocacy For People Who Lack Capacity

For people who have been assessed as lacking capacity to make certain decisions

Community, Peer & Citizen's Advocacy

General advocacy support in and from the community

Contact details

0330 440 9000
info@theadvocacypeople.org.uk

Further information

www.theadvocacypeople.org.uk

 
 
SENDIASS

About

Special Educational Needs & Disability Information, Advice & Support Service, SENDIASS offer information, advice and support to:

  • Parents/carers of a child or young person (aged 0 – 25) with a special educational need or disability

  • Those age 25 years or under that have a special educational need or disability

  • Anyone working with children or young people aged 0 – 25 with a special educational need or disability.

 

This is a free and confidential service and aims to:

  • Empower children, young people and parents/carers of children with special educational needs or disability by ensuring they have the information, confidence and support needed to make informed decisions

  • Provide information and support

  • Encourage good working relationships between parent/carers, children, young people, education providers, the local authority and other agencies

  • To support schools and other agencies to continue to develop good working practices in relation to SEND.

 

 

Further information

 

To meet the team, view their working days and for direct telephone numbers, please visit the Cornwall SENDIASS website:

www.cornwallsendiass.org.uk

Or download introduction to Cornwall SENDIASS team  here.

 

 

Contact

Tel: 01326 331633 

 

Cornwall SENDIASS
Tolvaddon
Unit 3 East Pool
Tolvaddon Business Park
Redruth
Cornwall
TR14 0HX

 

Contact details with an  online contact form

SENDIASS logo
 
 
Isles of Scilly Parent Carers

Please note:  A new Parent Carers forum for the Isles of Scilly is currently being set up, if you would like further information or would like to join the group please email:  ios-pcf@outlook.com  The previous Isles of Scilly Parent Carers Forum closed 17th December and if you would like further information please contact Kate Hurn, Operations Lead and Parent Carer Participation Adviser, South West region, kate.hurn@contact.org.uk

Further Information

 

Contact

Contact are a charity that supports for families with disabled children, with guidance and information. They bring families together to support each other.

Contact website:  www.contact.org.uk

National Network of Parent Carers Forums, NNPCF

The National Network of Parent Carer Forums is the independent national voice of parent carer forums, a representative organisation consisting of the local network of parent carer forums across England.

NNPCF website:  www.nnpcf.org.uk

Independent Panel for Special Education Advice, IPSEA

About

Independent Provider of Special Education Advice, IPSEA offers independent legally based advice, support and training to help get the right education for children and young people with special education needs and disabilities, SEND.

The website has legal guides and resources for parents and carers, which can be downloaded and are complimented by a free Advice Line which provides legally based information and next step advice on any educational issue that is a result of a child’s SEND.  There is also a Tribunal Helpline that gives advice on appeals and disability discrimination claims to the SEND Tribunal.

 

Contact

Tel:  Advice and support line: 0800 018 4016   Tribunal Help Line:  0845 602 9579

Website:  www.ipsea.org.uk

 
 
Citizens Advice

About

Citizens Advice, offer free impartial information and advice on a wide range of topics for challenges that you may face. 

 

This includes:

 

  • employment law

  • benefits

  • housing

  • debt

  • consumer rights

  • discrimination

  • family and personal

  • Immigration & nationality

  • SEND.

 

 

You can get advice from Citizens Advice online and over the phone.  

 

If you would like advice over the phone, you can ask for a call back by texting the word ADVICE  to the number 78866 for general queries.  You will be called back within 48 hours, excluding weekends or call free 0800 144 8848, Monday – Friday, 10 am until 4 pm.

 

When you call your details will be taken and you will receive a Gateway Assessment interview, to help assess your situation and get you the advice you need.  Please be aware if you do this we may leave a message to say that we have called. 

 

For debt related issues, text  DEBT to the number 78866.  You will be called back within 48 hours, excluding weekends or you can also call the debt team on 01752 850488 09.30 am to 11.30 am Monday - Friday. 

 

For a Face to Face digital online session at home, text ADVICE DIGITAL to 78866.  You will be called back within 48 hours, excluding weekends or call free on 0800 144 8848 Monday to Friday 10 am to 4 pm.  The Council of the Isles of Scilly Customer Hub Team can also arrange this for you tel: 01720 424400 or email: enquiries@silly.gov.uk.

There is a laptop available at Carn Gwaval Wellbeing Centre for those who don't own their own equipment that can be used for online Face to Face pre-arranged meetings, to call the advice line and general internet use with Citizens Advice Support, web chat is also available.  To arrange this please contact Council of the Isles of Scilly Customer Hub tel: 01720 42400 or email: enquiries@scilly.gov.uk 

 

Further information

Citizens Advice Cornwall website:  www.citizensadvicecornwall.org.uk/

 

Getting advice:  www.citizensadvicecornwall.org.uk/getting-advice/

 

Citizens Advice:  www.citizensadvice.org.uk/  

 

Citizens Advice also have a useful guides on how to make an NHS and Social Care complaint:   www.citizensadvice.org.uk/health/nhs-and-social-care-complaints/

Patient Advice and Liaison Services – PALS

 

About

 

Patient Advice and Liaison Services, also known as PALS, are a free and confidential hospital service that are a point of contact for patients and their families.

 

PALS can help you with

 

  • Advice and information

  • Feedback – give comments, suggestions and thanks

  • Advice on how to make a formal complaint

 

Each NHS Trust has its own PALS service, you can find out which Trust your hospital is a part of by looking at your NHS appointment letter.

 

 

Contacts

 

Royal Cornwall Hospitals Trust

Patient and Family Experience Team 

Tel:  01872 252793 

Email:  rcht.patientexperience@nhs.net 

 

Royal Cornwall Hospitals NHS Trust

Treliske

Truro

Cornwall

TR1 3LJ

 

For further information visit website:  www.royalcornwall.nhs.uk/get-in-touch/

 

Cornwall Partnership Foundation Trust 

Patient Advice and Liaison Service

Tel:  01208 834620 

Email:  cpn-tr.palscft@nhs.net

 

PALS Office
Cornwall Partnership NHS Foundation Trust
Room 11
Banham House
Bodmin Hospital
PL31 2QT

 

For further information visit website:  www.cornwallft.nhs.uk/patient-advice-and-liaison-service

 

University Hospitals Plymouth

Patient Advice and Liaison Service

Tel:  01752 439884

Email:  Plh-tr.PALS@nhs.net

 

Patient Advice & Liaison Service

Patient Services Office

Level 7, Derriford Hospital

Plymouth

PL6 8DH

 

For further information visit website:  www.plymouthhospitals.nhs.uk/pals

 

University Hospitals Bristol NHS Foundation Trust 

Patient support and complaints team

Tel: 0117 342 1050

Email: PSCT@unbristol@nhs.UK

Post:  University Hospitals Bristol NHS Foundations Trust, Patient Support and Complaints team, A201, Welcome Centre, Bristol Royal Infirmary, Upper Maudlin Street, Bristol BS2 8HW

 

http://www.uhbristol.nhs.uk/patients-and-visitors/support-for-patients/patient-support-and-complaints/

 

 

Great Ormond Street Hospital

The Pals Office is located in the main reception area. 

Tel:  020 7829 7862 

Email: pals@gosh.nhs.uk

 

 
Healthwatch Isles of Scilly

About

 

Healthwatch is an independent champion for people who use health and social care services their aim is to make sure that those running services, put people at the heart of care. 

 

Local Healthwatch staff and volunteers identify what matters most to people by going out into the community and visiting services to get public feedback on their experiences. They work collaboratively with health and care partners to ensure their services are the best they can be.

Where possible, your Local Healthwatch will let you know when changes are planned to services in your community and help you have a say.  They will also encourage those in charge of local care to involve you when changes are being planned to services.

You can also speak to your local Healthwatch to find information about health and social care services available locally.

 

Contact

 

Healthwatch Isles of Scilly

Unit 1, Gleaner House

Buzza Street

St. Mary’s

Isles of Scilly

TR21 0HW

 

contact@healthwatchislesofscilly.co.uk

01720 423037

https://www.healthwatchislesofscilly.co.uk/

 

Youtube video about Healthwatch

https://www.youtube.com/watch?v=5l_5RTgkpf4

 

Healthwatch Cornwall

https://www.healthwatchcornwall.co.uk/

Healthwatch England

https://www.healthwatch.co.uk/

 
 
Support for Parent Carers

There are many organisations and charities who offer information, advice and services.  Please download our document for information or contact us and we will print out a copy for you. 

 

Children and Family Services Tel:  01720 424490  Email:  LocalOfferScilly@scilly.gov.uk

 
Support for Parents and Families

There are many organisations and charities who offer information, advice and services to parents, parents-to-be and families.  Please visit our Family Scilly website that has information about Support for Parents and Families, with links to online parenting courses, podcasts and much more.

If you are want help to look for information, please contact us. 

Children and Family Services Tel:  01720 424490  Email:  LocalOfferScilly@scilly.gov.uk

Website:  ​www.familyscilly.org.uk

Boy with heart thumbnail image
SCOPE Sleep Podcasts

SCOPE have put together a series of sleep right podcasts for disabled children and their families to help encourage a good night's sleep.

The podcasts cover:

  • The golden Hour

  • Relaxing Bedrooms

  • Sleepy Foods

  • Bedtime Activities

  • Bedtime Anxiety

  • Relaxation

​​

To listen to the podcasts visit Sleep Right podcast | Disability charity Scope UK

CONTACT online workshops

CONTACT run a variety of workshops and you can join some of them online, booking is through Eventbrite.  An outline of what is available can be found on the contact website:  www.contact.org.uk/help-for-families/workshops-and-events/workshops 

 
Siblings and Young Carers Group

About

The Siblings and Young Carers Group is for children and young people who help to care for someone in their family with an illness, additional need or disability and/or are a sibling.

The Sibling and Young Carers Group gives children and young people the opportunity to meet other young carers in an informal way, giving them a break and an opportunity to enjoy activities.  It gives siblings and young carers a safe environment where they can talk about their feelings, if they want to, and explore their experiences and emotions, in a supportive setting away from the family.

Young carers are children and young people under the age of 18 who take on practical and/or emotional caring responsibilities to look after one of their parents or a brother or sister.

Siblings of children with additional needs or disabilities sometimes miss out on activities and parental attention due to the needs of their sibling.

Further Information

If you know a child or young person that you think may benefit from being part of the Siblings and Young Carers Group, please contact the Children’s Social Care team who will provide more information.

www.scilly.gov.uk/childrens-services/children’s-social-care

Contact

Children & Family Services

Council of the Isles of Scilly

Carn Gwaval

St. Mary’s

Isles of Scilly

TR21 0NA

 

Tel: 01720 424483 

Email: childrenssocialcare@scilly.gov.uk

Guide Dogs

Guide Dogs are offering free assistive technology for children with a visual impairment aged 3-18.

Guide Dogs Tech for All Service will provide iPads to visually impaired children aged 3-18, while children aged 11-18 may choose an iPhone instead. The devices have excellent features built-in, and they'll provide online guides and tutorials to help get started. The devices are free of charge. The only requirement is proof of vision impairment. More information can be found at

 

https://www.guidedogs.org.uk/getting-support/help-for-children-and-families/living-independently/assistive-technology-for-children/

Guide Dogs logo
Home-Start

About

Home-Start offers free, confidential support, friendship and practical help to parents of children under five who are going through a difficult time. Being a parent can be tough and for some parents it can be particularly difficult because they are also having to cope with issues such as post-natal depression, their or their child’s illness or disability, isolation or multiple birth.

A carefully selected Home-Start volunteer who has parenting experience themselves regularly make contact with a family and offers emotional and practical support through difficult times for as long as it is helpful and needed.

With services moving online as a result of Covid parents from the Isles of Scilly can now access online groups and support.

Contact

Tel: 01209 214490

Email: info@homestartkernow.org.uk

www.homestartkernow.org.uk

Home Start Logo
 
Important Documents

 

Documents and links

 

Isles of Scilly  Inclusion Charter

Download PDF version of  the Isles of Scilly Children's Charter

Council of the Isles of Scilly SEND Strategy

Download PDF Council of the Isles of Scilly Making a Difference - SEND Strategy 2019-2022

Council of the Isles of Scilly Disability Register

A voluntary register for children and young people with a disability, additional need or impairment, aged 0-19 years and living in Scilly.

  • be kept informed and up to date about services and activities in Scilly for disabled children and young people and their families through our contact list

  • have the opportunity to share your views through consultation and surveys, to influence planning for the needs and demands for services in Scilly

  • the information you give us is important as it helps us to plan and monitor services.

 

Join the Council of the Isles of Scilly Disability Register by download a form: 

CIOS Disability Register Word document 

CIOS Disability Register PDF

Privacy Statement for Disability Register PDF

 

Council of the Isles of Scilly Family Services Complaints Policy

Download complaints Isles of Scilly Children & Family Services policy PDF

 
Preparing for Adulthood Timelines 

 

The timelines were co-produced with input from professionals, organisations and representatives from the Parent Carer Forum and mark milestones along a child's journey from birth to adulthood and living independently.  It shows where professionals and organisation offer support to a child and their families both universal and more specialist intervention if needed.

 

There are 4 timelines covering the 4 areas of preparing for adulthood: