Specialist Children's Health Services
 

About Specialist Children's Health Services

Cornwall Partnership NHS Foundation Trust, CFT, provide some specialist services by nurses, therapists, paediatricians and community health care workers.

https://www.cornwallft.nhs.uk/childrens-services 

These include: 

You can access these services via the Early Help Hub

Early Help Hub

Tel:  01872 322277

Email: earlyhelphub@cornwall.gov.uk

For Children and young people living in the Isles of Scilly, these services can be accessed by a referral from a Health Visitor, School nurse, GP or SENCO.  The Isles of Scilly Family Health team, the Health Visitor and School Nurse, can also refer to a Community paediatrician.

Royal Cornwall Hospitals Trust, RCHT provide acute care and general hospital services as well as some community services.  These are split into 4 main headings – caring for babies, caring for children in an emergency or operation, caring for children with long term conditions, caring for children in the community.

https://www.royalcornwall.nhs.uk/services/child-health/

Referrals to these services are from a professional working with the child, for example GP, health workers, school nurses. Outpatient clinics are held on St. Mary’s around every 3 months - caring for children with long term conditions and caring for children in the community.

 

Speech and Language Therapy, including Alternative and Augmentative Communication (AAC)

About

Children's Speech and Language Therapy Service (SALT) supports children and young people aged 0-19 years who have difficulties with communication, or with eating, drinking and swallowing.

  • understanding what is said to them

  • expressing themselves

  • talking clearly (saying speech sounds)

  • stammering

  • swallowing (eating and drinking)

This can include children/young people with delay in learning to talk, speech sound production difficulties, learning difficulties, cleft palate, stammering, selective mutism, autism, hearing impairment and physical disabilities. 

Speech and language therapists (SLTs) are registered allied health professionals. Allied health professional is how we describe trained professionals who aren’t doctors or nurses.  SLTs aim to help to develop  the skills of parents/carers and other people who support the child in their everyday environments.  Sometimes, as part of a child's therapy training will be offered to parents and other people working with the child.  Some preschools and schools may already have attended training that will benefit chidlren with speech and language needs.  SLTs see children in schools, preschools, clinics and homes.

Referral via the Early Help Hub and For children and young people living in the Isles of Scilly a referral can be made by the School SENCO, the School Nurse, GP or a Health visitor.

Some of this process requires observation from a professional and a Speech and Language Therapist visits the Five Islands School on a regular basis.  A decision is then made as to whether the child meets the criteria.  

The integrated AAC (Alternative and Augmentative Communication) team is an extension to the local Speech and Language Therapy offer.  When a child or young person is able to demonstrate that to communicate their needs and wishes, learn and socialise they need a more advanced system, their local Speech and language therapist will request the involvement of this team.

Contact

Early Help Hub

Tel: 01872 322277 Email: earlyhelphub@cornwall.gov.uk

 

Isles of Scilly Family Health team, Health Visitor and School Nurse Tel:  01720 423722

Further Information

Education

Five Islands Academy

https://www.fiveislands.scilly.sch.uk/speech-and-language-therapist-1/

Health

Cornwall Partnership NHS Foundation Trust website has useful information, resources and links:

https://www.cornwallft.nhs.uk/childrens-speech-and-language-therapy

 

 
 

NHS Children's Community Therapy Service

The Royal Cornwall Hospitals Children’s Community Therapy service provides an integrated therapy service for children who have Neurodevelopmental, physical, sensory - motor difficulties, developmental delay, under-nutrition or excessive weight gain.

 

The team is based at Dolphin House Child Development Centre at the Royal Cornwall Hospital in Truro and comprises occupational therapists, physiotherapists and dietitians who deliver therapy in children’s homes, schools and from treatment bases in Truro, Penzance, St Austell and Redruth.

 

The Service works closely with Acute & Community Paediatricians, other therapists and local authority professionals to provide coordinated care for children with atypical development and disability.

Contact details

Tel: 01872 254514

Email: rch-tr.CommunityPaediatricTeam@nhs.net

Further information

NHS Royal Cornwall Hospitals Trust, Caring for Children in the Community, Children’s Community Therapy Service

https://www.royalcornwall.nhs.uk/services/child-health/caring-children-community/

 

 

Occupational Therapy

About

Occupational Therapy is a part of the Children’s Community Therapy Services (CCTS) and Community Paediatrics work in partnership within the department of Community Child Health at the Royal Cornwall Hospital NHS Trust.

 

Children’s Community Therapy deliver Occupational Therapy, and Physiotherapy treatment, to children and young people who present with, or are being investigated for, neurological, neuro-developmental, neuro-muscular conditions, atypical development and/or disabilities.

 

Occupational Therapists assess functional and sensory needs and work with parents and carers to enable children to become as independent as possible.  This is likely to include a course of activities designed to increase range of movement, coordination and sensory awareness.

 

Occupational Therapy services may also include, the arrangement of loan equipment, moving and handling advice for children and carers, arrangement of minor and major adaptations.

 

The Occupational Therapist can arrange to loan the equipment that your child needs at home via the Cornwall Community Equipment Loan Service.

 

Major adaptations are funded via the Disabled Facilities Grant (DFG).   For advice on eligibility for Disabled Facilities Grants to adapt a home for someone with a disability please see:  www.gov.uk/disabled-facilities-grants/overview

Referrals to Occupational Therapy are made by any health or educational professional who knows the child or young person such as a GP, Health Visitor, School Nurse, SENCO with input from parents.  There may also be observations of the child or young person to assess eligibility.

An Occupational Therapist visits the Five Islands Academy on occasion and may work with children and young people, meet parents and provide a goal and/or advice sheet.

Contact

Isles of Scilly Family Health Team, Health Visitor and School Nurse Tel:  01720 423722

St. Mary’s Health Centre Tel:  01720 422628

 

Further Information

NHS Royal Cornwall Hospitals Trust, Caring for Children in the Community, Children’s Community Therapy Service

https://www.royalcornwall.nhs.uk/services/child-health/caring-children-community/

Five Islands Academy

https://www.fiveislands.scilly.sch.uk/occupational-therapist-1/

Physiotherapy

About

Paediatric physiotherapy is a part of the Children’s Community Therapy Services (CCTS) and Community Paediatrics work in partnership within the department of Community Child Health at the Royal Cornwall Hospital NHS Trust.

 

Children’s Community Therapy deliver Occupational Therapy, and Physiotherapy treatment, to children and young people who present with, or are being investigated for, neurological, neuro-developmental, neuro-muscular conditions, atypical development and/or disabilities.

 

Physiotherapists assess movement abilities and plan individual treatment programmes to encourage development and independence.  They also show parents and carers how to carry out exercises and activities so that the child practices them regularly.

Referrals can be made by any health or educational professional who knows the child or young person such as a GP, Health Visitor, School Nurse, SENCO with input from parents.  There may also be observations of the child or young person to assess eligibility.

 

Contact

Isles of Scilly Family Health Team, Health Visitor and School Nurse Tel:  01720 423722

St. Mary’s Health Centre Tel:  01720 422628

 

Further Information

NHS Royal Cornwall Hospitals Trust, Caring for Children in the Community, Children’s Community Therapy Service

https://www.royalcornwall.nhs.uk/services/child-health/caring-children-community/

 

 

Dietitians

Dietitians provide dietetic support to disabled children, their families and the professionals who work with them. Their focus is on children diagnosed with a disability who are eating and/or drinking and who are at risk of under-nutrition.  The team also provides a service for significantly overweight children aged up to 6 years under the LEAF (Lifestyles, Eating & Activity for Families) Programme.

Contact details

Tel: 01872 254514

Email: rch-tr.CommunityPaediatricTeam@nhs.net

Further information

NHS Royal Cornwall Hospitals Trust, Caring for Children in the Community, Children’s Community Therapy Service

https://www.royalcornwall.nhs.uk/services/child-health/caring-children-community/

 

 
 

NHS Autistic Spectrum Disorder Assessment Team (ASDAT)

About

 

The Autism Spectrum Disorder Assessment Team, ASDAT, is provided by Cornwall Partnerships Foundation Trust. 

This multi-disciplinary team with Cornwall Partnership NHS Foundation Trust provides formal NHS diagnostic assessments for children with suspected Autism up to the age of 18 years.  The team will form a core part of the new Neurodevelopmental Pathway being established to provide multi-disciplinary assessment for children with co-morbid neurodevelopmental conditions whose needs are more complex.  Referrals are subject to screening against eligibility criteria.

 

Please also see the Child and Adolescent Mental Health, CAMHS section for children with ASD and co-morbid mental health needs.

 

The Isles of Scilly Family Health team can offer advice.  

 

Children over 5 years of age will need to be referred by any professional such as a GP, School nurse, SENDCO.

 

Children under 5 years 6 months can only be referred for ASD assessment through joint agreement between a Community Paediatrician and the child’s Speech and Language Therapist, with those specific professionals making the referral.  If the child is not already known to both these teams then referral should be made to these specialists who will then decide with the family about autism assessment.  

 

At the Five Islands Academy, students who have a formal diagnosis of autism are supported in school by the SEN team with appropriate support from the Autism Spectrum Team. Once formal training has been completed, they will confirm an Autism Champion within the academy.

Contacts

Early Help Hub

Tel: 01872 322277  Email:  earlyhelphub@cornwall.gov.uk

Isles of Scilly Family health team, Health Visitor and School Nurse 01720 423722

For further information:

Cornwall Partnership NHS Foundation Trust, Autism Spectrum Disorder Assessment Team, ASDAT

www.cornwallft.nhs.uk/asdat-team

Five Islands Academy Autism Spectrum Team   www.fiveislands.scilly.sch.uk/the-autistic-spectrum-team

 

The Wellbeing and Autism Wheel

 

The Wellbeing and Autsim Wheel has lots of useful advice and information, please note that you will be directed to services available are in Cornwall, please see the Isles of Scilly Local Offer for local services that are available.

 

The information held within the wheel is applicable to a wide range of developmental needs, and is not exclusive to autistic spectrum disorder.

 

www.supportincornwall.org.uk/autismwheel

 
 

NHS Child and Adolescent Mental Health Service, CAMHS, including Learning Disability Nursing

Specialist community child and adolescent mental health services (CAMHS) provide assessment, advice and treatment for children and young people with severe and complex mental health problems.  CAMHS also provide support and advice to their families or carers.  Access to the specialist team is based on the Child Global Assessment Scale (CGAS).  This is a rating of functioning based on a clinician's assessment of a range of aspects related to a child's psychological and social functioning.

A child or young person with a moderate, severe or profound learning disability (LD) can often present with complex behaviours which may, or may not be symptomatic of a mental health condition.  These referrals will not automatically access to a mental health assessment within the specialist CAMHS service.  They will be given to the specialist LD nursing service, which has a specific role in assessing the young person to establish whether there is a mental health condition.  Children and young people with this level of learning disability may develop complex patterns of behaviour which can be distressing.   This can include hurting themselves or other people and it can be difficult to keep them safe.

Children and young people with Autism Spectrum Disorder will only be offered a mental health assessment within CAMHS when there are indications of a mental health condition which go beyond the core features of the primary diagnosis of Autism.  Please see NHS Autism Spectrum Disorder Assessment team, ASDAT.

Referral via the Early Help Hub, for children and young people living in the Isles of Scilly, you can also discuss referral with GP's, social worker, health worker or school SENCO. 

Contact

 

Early Help Hub

Tel:  01872 322277 Email: earlyhelphub@cornwall.gov.uk

Further Information

 

Cornwall Partnership NHS Foundation Trust (CFT)

https://www.cornwallft.nhs.uk/camhs/

For information on support from CAMHS during Covid-19 click here.

NHS Community Paediatrics

The Community Child Health team works with children and young people in Cornwall who have a significant developmental disability or vulnerability.  The medical team works extremely closely with other health professionals, such as therapists, as well as professionals in education and social care.  Together they work to make sure these professionals in education and social care.  Together they work to make sure these children have the support, care and treatment necessary to reach their full potential.  The Neurodevelopmental pathway provides assessment, diagnosis and ongoing coordination of care, alongside professional colleagues in education and social care.  The service is personalised for each child.  Most children will be seen and reviewed within the team, receive advice on available options and support and then discharged from the service.  Others will enter an assessment pathway or a long-term care pathway.  The doctors hold a number of specialist roles, including the Designated Medical Officer for Special Educational Needs, who supports the Education, Health and Care plan process.

Contact

 

Royal Cornwall Hospitals NHS Trust

Tel:  01872 254514

Email:  rch-tr.CommunityPaediatricTeam@nhs.net

 

Further Information

https://www.royalcornwall.nhs.uk/services/child-health/

 

NHS Bladder and Bowel Service

The Bladder and Bowel Specialist Service provides professional advice, guidance and information on the management of bladder and bowel continence.

The Bladder and Bowel Specialist Service also provides treatment of faecal and urinary incontinence including enuresis and related bladder and bowel problems in children and adults.

The Isles of Scilly Family Health team, the Health visitor and School nurse, can offer you support and refer you to the service.  A clinic is held on St. Mary’s around every 3 months for children with continence issues.

Contact

Isles of Scilly Family Health Team, Health Visitor and School Nurse Tel:  01720 423722

 

Further Information

ERIC, the children’s bowel and bladder charity has an online information resources and also offer telephone support.

https://www.eric.org.uk/

Cornwall Partnership NHS Foundation Trust (CFT)

https://www.cornwallft.nhs.uk/bladder-and-bowel-service/

 

Wheelchair services and Community Equipment

The Cornwall wheelchair service is available to those registered with a Cornwall GP and the Isles of Scilly.  For children with specialist wheelchair needs and adults who require standard or specialist wheelchairs.

Major home adaptations are funded via the Disabled Facilities Grant (DFG). https://www.gov.uk/disabled-facilities-grants 

 

A Beach Wheelchair is available in partnership with Mobility Cornwall, there is an all-terrain wheelchair also known as a sand chair for the Isles of Scilly that can be hired out as well as other outlets throughout Cornwall. To find out more you can visit Cornwall mobility website or a map by clicking here.

 

Contact

Tel:  01209  318122

Further Information

Cornwall Partnership NHS Foundation Trust (CFT), Wheelchair Services

https://www.cornwallft.nhs.uk/wheelchair-service/

 

Disabled Facilities Grant (DFG)

https://www.gov.uk/disabled-facilities-grants

 

For information about Long Term Use and Eligibility Criteria

https://intranet.doclibrary.cornwallft.nhs.uk/download.cfm?doc=docm93jijm4n2239&ver=4971 

 

My AFK

Supports disabled children and young people to live independent and fulfilling lives and provide specialist mobility equipment not available on the NHS to disabled children and young people up to their 25th birthday, across the UK.

https://www.my-afk.org/

 

 
 

NHS Sleep Wise Service

Hunrosa is commissioned by the NHS to provide limited individual sleep assessments to children with complex health needs who are already under the care of a Community Paediatrician at the Royal Cornwall Hospitals NHS Trust. 

 

Hunrosa’s Sleep Wise service periodically deliver specialist workshop-based training to professionals and parents on the Isles of Scilly to help them to recognise the causes of sleep disturbance and develop ways to address them.

 

You can access this service by either attending one of their workshops OR for one to one support via a referral from a Community Paediatrician only.

 

Sleep Wise is managed by Hunrosa, who also provide sleep support and advice for ages 2-over 60 years.

 

Contact details

Tel:  01579 346070/07401 149973   Monday to Friday 9am to 7pm

Email: info@hunrosa.co.uk

Further information

https://www.hunrosa.co.uk

Hunrosa have a Facebook page @hunrosasleep with lots of useful tips and information. 

 

Infographics with sleep tips are available by clicking on this link  - Hunrosa Sleep infographic

 

 

NHS Children's Continuing Care and Personal Health Budgets

About

Some children and young people (up to age 18), may have very complex health needs.  Children's Continuing Care is an additional package of care to support parents or carers to meet their child's health needs at home because they cannot be met by existing services alone.  NHS Kernow Clinical Commissioning Group, which is responsible for arranging NHS service locally, can also put in place individual packages of continuing care.  When a child or young person is referred for an assessment, NHS Kernow might first check if they are likely to need a full assessment using a decision support tool.  A final decision to award a package of care will be made by a Panel that includes clinicians and will be subject to regular review.  Children eligible for Continuing Care can request a Personal Health Budget.

For young people over the age of 18 there is a similar process called NHS Continuing Health Care. This is different in that if a young person meets the criteria then all of their care needs (health and social care) are paid for by the NHS.

 

Some people may be eligible for a Personal Health Budget - you can find out more about Personal Health Budgets on the dedicated national website at www.personalhealthbudgets.england.nhs.uk

Information about personal budgets can be found on the NHS England website and information and help managing your personal budget, including employing PA's, and purchasing services and products, can be found on the PHBChoices website.

Education Health and Care plans

An Education Health and Care plan takes into account the child or young person’s special educational need together with any health or social care need that they may have, also known as EHC plan.  

 

An EHC plan is integrated support for children and young people with complex special educational needs and physical disabilities.

Contact

 

Tel:  01726 627800

Email:  KCCG.childrenspanel@nhs.net

Further information

NHS Kernow

https://www.kernowccg.nhs.uk/your-health/children-and-young-people/continuing-care/

For more information about Education Health and Care Plans (EHC Plans), please see our section on EHC Plans

 

NHS Children’s Community Nursing

About

Community children's nurses will support your child at home or another setting in the local community.  The team can provide direct nursing care and support to those with acute, long term and complex care for example the team can provide nursing support to those with acute, long term and complex care for example the team can provide nursing support for children who are dependent on 'technology' e.g. are tube fed or have a tracheostomy and also palliative and end of life care in conjunction with other organisations.  Their aim is to prevent or reduce the amount of time your child needs to spend in hospital.  They will work with you and the other health staff and organisations which support your child's health and wellbeing.

There are also Diana Team Clinical Psychology service for children and young people with life limiting or threatening disorders with the need for psychological input due to the issues arising from their condition and who receive a service from the Children's Community Nurses.

Further Information

Cornwall Partnership NHS Foundations Trust

https://www.cornwallft.nhs.uk/community-and-diana-services/

 

Children’s Palliative Care

About

Palliative care and End of Life care, find below a list of links with information that you may find useful.

Further Information

NHS Kernow

https://www.kernowccg.nhs.uk/your-health/end-of-life-care/

Cornwall Partnership NHS Foundations Trust

https://www.cornwallft.nhs.uk/community-and-diana-services/

Royal Cornwall Hospitals Trust

https://www.royalcornwall.nhs.uk/services/palliative-and-end-of-life-care/

Children’s Hospice South West

https://www.chsw.org.uk/

 

Penhaligon’s Friends

https://www.penhaligonsfriends.org.uk/

NHS

https://www.nhs.uk/conditions/end-of-life-care/

 

NHS Acute Liaison Nurses for Learning Disabilities and/or Autistic Spectrum

At Royal Cornwall Hospitals Trust there are dedicated nurses to support patients with learning disabilities and autism spectrum conditions, they support patients to be prepared before they come to hospital and during their stay, helping individuals with a learning disability in hospital get high quality services, choice and control over their care.

Available at Royal Cornwall Hospital in Truro, St. Michael's Hospital in Hayle and West Cornwall  Hospital in Penzance.

They use Hospital passports which are are available on web link for you to download and complete before a hospital stay.

 

Further information and contact details

https://www.royalcornwall.nhs.uk/our-care-promise/learning-disabilities/

 

 

The Special Parenting Service

The Special Parenting Service supports parents who have a mild to borderline learning disability. This means an IQ of 55 – 85.

 

The Special Parenting service are a range of professionals available to work with families to improve a parent’s skills.  They will assess, teach and offer guidance.  Their role is to help parents understand the needs of their children and in particular how to:

  • keep children safe

  • set routines for their baby or child

  • access further support and help

  • manage their child’s behaviour

 

Contact

Tel:  01872 221442

Email:  cpn-tr.SPSTeam@nhs.net

Further information

https://www.cornwallft.nhs.uk/special-parenting/

 

 
 

NHS Children's Epilepsy Nurse Specialist

Paediatric Epilepsy Nurse Specialist Service help those with a diagnosis of epilepsy who have recurrent seizures that start in the brain.  The Paediatric Epilepsy Nurse Specialist (PENS) work alongside professionals across Cornwall from Royal Cornwall Hospital Trust, Derriford Hospital and Barnstaple.  Not all children with epilepsy will be referred to the PENS.

 

A referral will be made following the identification of a specific need relating to the child or young person’s epilepsy, where intervention and additional support from the nurse is deemed necessary.  

 

If the young person is 14 years or above, at the time of referral, then introduction to the Adult Epilepsy Nurse Specialist may be considered more appropriate.  The nurse will provide expert advice, teaching and guidance to education settings and others involved in the care of the child.

 

Contact detail

Early Help Hub

Tel: 01872 322277

Email: earlyhelphub@cornwall.gov.uk

Further information

https://www.cornwallft.nhs.uk/paediatric-epilepsy-nurse-specialist-service

 

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Children and Family Services

Council of the Isles of Scilly

Carn Gwaval Wellbeing Centre

St Mary's

Isles of Scilly

TR21 0NA

Telephone: 01720 424490

Email: localofferscilly@scilly.gov.uk